Patient Advocacy Groups
A patient and parent advisory group (PPAG) has been established to support the overarching goals of the PFN-STRIDE RDCRC. PFN-STRIDE researchers will engage members of the PPAG and another partner patient advocacy organization, Mycology Advocacy, Research and Education (MyCARE), throughout the lifecycle of the consortium.
MYCology Advocacy, Research, & Education (MYCARE)
Mycology Advocacy, Research & Education (MYCARE) Foundation is dedicated to improving outcomes for patients with invasive fungal diseases. MyCARE’s mission is to provide a voice to mycology patients in order to increase awareness, educate and support patients and caregivers, share resources, and ultimately improve outcomes in mycology. They support patients and caregivers impacted by serious, chronic, or invasive fungal infections through advocacy, research, and education.