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Research Studies

How do I learn more about current open studies?

Below you will find a list of current studies. Clicking on the link will take you to the study summary, which will provide you with all the important details for each study.

How do I participate in a study?

Each study summary provides a list of hospitals or clinics where the study is being run. Using the contact information provided, you may contact any of these facilities in order to request participation in a study.

Showing All Ongoing PFN-STRIDE Studies

Recruiting

Invasive fungal diseases (IFD) are infections caused by opportunistic fungi that are ubiquitous in the environment and often prey selectively on vulnerable populations, including patients who are immunocompromised. Although rare, IFDs are associated with significant morbidity and short-term case fatality rates of more than 30%. Current diagnostic approaches are limited. In immunocompromised children, IFDs are rarer and even more complicated to diagnose and manage than those in adults. There is a dearth of research aimed at longer term follow-up of IFD, advancing diagnostic approaches and management protocols for pediatric IFDs, and an absence of data on patient and caregiver perspectives of the impact of these infections.

The Rare Diseases Clinical Research Consortium (RDCRC) outlined in this proposal, the Pediatric Fungal Network STudy of Rare Invasive Fungal DisEases in Immunocompromised Pediatric Patients (PFN-STRIDE), will leverage an existing consortium (Pediatric Fungal Network) that is dedicated to studying IFDs in pediatric patients.